Our bodies tell our sacred stories and as patients we need access to healthcare that honors our truths.
Sindura Reddy
PCRHP Patient Stakeholder
The PCRHP Patient Stakeholder Group (PSG) was founded in 2017 and has continued to evolve and grow in its relationship with PCRHP. Between 2021 and 2023, the PSG met monthly to share space, discuss issues related to sexual and reproductive health research, and impart their lived experience expertise. The PSG provided input on topics as broad as PCRHP's overall strategic plan, and as detailed as reviewing specific survey questions.
Researchers consulted with PSG and presented topics for discussion, research project ideas, study materials for review, and test messaging of study results. The PSG provided their perspectives and feedback to ensure projects are approached in ways that are culturally affirming, inclusive, accessible, equitable and respectful.
**The PCRHP Patient Stakeholder Group is currently on hiatus while the PCRHP team takes time to review and assess how to best leverage and uplift community engagement moving forward, as the program’s portfolio continues to evolve and develop. PCRHP continues to be grateful for the dedicated time and energy of the PSG members and all the invaluable contributions of the group to PCRHP’s work and mission.**
PSG's Impact
The PSG was integral to the development and evaluation of My Birth Control, PCRHP’s contraceptive decision support tool.
The PSG also helped shape the Person-Centered Contraceptive Counseling (PCCC) measure.
Values of how we do our work
- We hold a community space that values inclusion. In this space, individual stories and perspectives are respected, heard, and validated. All is done from a place of love by the act of creating space and listening to each other.
- We are committed to creating environments that are healing-centered, restorative, and powerful. We acknowledge that each of us comes to the space holding different experiences and harms related to the topics we discuss.
Values of the work we do
- Our work is grounded in the understanding that all people have the right to bodily autonomy.
- We work from a place of solidarity with the unheard. We bring an intersectional lens in the evaluation of research practices and approaches to further freedom, equity, and justice.
- We share our expertise to ensure that individuals’ experiences and values are centered and respected in healthcare and research.
- We serve to bring accountability, transparency, and change to research and medicine. We hold research to standard, not for science, but for humanity.
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